Did you know that 1 in 26 people will develop epilepsy in their lifetime? That’s more than 365,000 people in the Greater Chicagoland area alone.
A person is considered to have epilepsy when they have two or more unprovoked seizures. Sounds simple, right? It’s not. There are over 20 types of seizures that range from a person’s body shaking uncontrollably to them simply staring off into space. Seizures can last for a few seconds to hours on end. In some types, the person is aware of their surroundings and in others, they are not. If a person is unable to keep their seizures under control, their lives can be severely impacted. The stigma associated with epilepsy alone can be overwhelming, however there is much more to face, including the inability to drive and treatment side effects.
The Power Of Three
CURE: Citizens United in Research on Epilepsy, the Danny Did Foundation, and the Epilepsy Foundation of Greater Chicago are united by the same cause. We are here to help. Whether it’s through researching to find a cure to end epilepsy, providing life saving devices that can detect seizures or helping individuals with epilepsy best manage their day to day lives, we are tackling epilepsy head-on. Together.
Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. One in 26 Americans will develop epilepsy in their lifetime. For many, this means uncontrollable seizures, stigma and discrimination, and sharply increased risks of health complications and sudden death. While treatment can help manage their symptoms, many people living with epilepsy have seizures that can’t be controlled by medications. What they really need is a cure. As we continue on the road to a cure for epilepsy, scientific research is our greatest hope of reaching our goal.
To learn more about CURE and the work they do, click here CURE.
Danny Did Foundation was established by Chicago parents Mike and Mariann Stanton after their son Danny died following a seizure in his sleep at age 4, a tragic case of Sudden Unexpected Death in Epilepsy, or SUDEP. Danny Did works to create a reality in which healthcare providers proactively communicate with patients and caregivers about the entire spectrum of risks – including SUDEP – that accompany a diagnosis of epilepsy. We also expand access to alerting devices that enable life-altering interventions when a seizure takes place.
To learn more about the work of the Danny Did Foundation, click here Danny Did.
The Epilepsy Foundation of Greater Chicago’s objective is to help people with epilepsy live their everyday lives. In order to do so, we serve our community through three primary avenues of support: advocacy, case management, and education. Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
To learn more about the Epilepsy Foundation of Greater Chicago and the work they do, click here EFGC.